P E R S O N S [ in - for - ma - tion ]


Collection of texts about person information processes

about their roles in the lives of individuals, groups, organisations and societies

and about other related subjects


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Citoyen. Spécialiste en évaluation sociale de systèmes d'information sur les personnes. Chercheur invité chez Communautique. Chercheur associé au CEFRIO. Écrivez-moi

The Networking of Health information Handbook for the management of ethical and social questions

Demers DL., Fournier F, Lemire M, Péladeau P, Prémont M-C et Roy DJ, The Networking of Health information Handbook for the management of ethical and social questions, http://www.hc-sc.gc.ca/hcs-sss/pubs/kdec/qc_electron/index_e.html

The unofficial English translation of Le réseautage de l'information de santé : Manuel pour la gestion des questions éthiques et sociales, Montréal, Centre de bioéthique, IRCM, 2004, 268 p.


Health information networking is emerging in a growing number of experiments and technological roll-outs. However, several stakeholders feel poorly equipped to deal with the unprecedent nature of the changes considered and the complexity of the ethical and social issues raised. This book contributes to meet the need to ensure a reasoned development and use of information technologies in the health care system.

Prepared by a multidisciplinary team, this handbook aims at promoting the identification, assessment and management of the ethical and social issues of health information networking . It is addressed to all the stakholders and partners of networking projects who wish to understand and contribute to a greater social control of change: decision makers, managers, data processing specialists, health professionals, patients, other users of health information as well as citizens. The handbook aims, to not only raise awareness about the great diversity of issues involved, but also to provide knowledge and tools which will make it possible to avoid the most likely pitfalls.

The first part of the handbook, Introduction to networking ethics, offers an initiation to the nature of health information networking and to its social, legal and ethical dimensions. The second part, Key questions, first presents an overview of 29 sets of ethical and social questions gathered in four distinct, but indissociable categories: questions of governance, of social social nature, of networking operationnalisation and of change management. Eight major problematics are the subjects of as many chapters providing explanations, checklists and references.

Unofficial English translation at Health Canada website :
http://www.hc-sc.gc.ca/hcs-sss/pubs/kdec/qc_electron/index_e.html

Complete original French book in PDF format :
http://www.ircm.qc.ca/bioethique/francais/telesante/documents/manuel_reseautage.pdf

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